Physical therapy 1 2 and 3

HiSo for Elijah to get on with DDI vantage. Which is an early intervention program here in utah, he had to be evaluated. His evaluation took place before the first MRI. We had 3 people come to our house and play games with him. They watched as he walked, talked and did the tasks he was asked to do.
Right away the nurse asked me if he always walked like that. With his knees bent. It sucks that it took me so long to notice what is so obvious to someone else.
The reports came back, Elijah is mentally a 2 year old, verbally 14 months and physically he was fine except for the way he walked. The nurse gave him a hearing test and he passed. She tried to stretch out his muscles and again it was confirmed hypertonia. She said that he qualifies for physical therapy because of knees

So I count that as his first physical therapy visit.

The second one was where Giselle his therapist came in and evaluated him. She stretched with him. Watched him walk, gave me a few suggestions to work with him at home. She suggested we get him shoes that support his ankles because he walks pronated. Flat footed. He rolls his ankles in sometimes.

We had to go to the DDI office after we got boots for him and sign papers. We saw Giselle again and she said the boots were working and she already noticed a difference. He wore the boots for a few weeks until his next appointment.

The next appointment the therapist didn't say anything about his shoes or probation. It was his hips are abducted. So we are given more stretches and these shorts called hip helpers. I was told he needed to wear them as much as he could tolerate. I have had him in those shorts for 8 hours a day. We are trying to retrain his gait and how he walks.

She told me that if we didn't see a difference that we would be doing braces. AFOS. That was 2 weeks ago. I don't see a major difference. If anything I see that he falls more. I try to be positive but it is so hard. I have tried to accept today when we see the therapist she will tell me that he needs braces. So it won't be such a shock, it's hard. I am stressed about today.

Continued

So after we were sent home from primary childrens the first time, the next appointment was 2 weeks away. We waited the two weeks and Thursday before his appointment he got a cold again. I was freaking out. We have done everything to keep him healthy and here we are again. So the day of the appointment comes and they check him. His lungs are good. We can go through it. They do the MRI and we go home. That was a Saturday. Nuerologist calls me Monday morning. Everything came back good, his spine is a little crooked but other than that he is great. No brain or spine problems. She asked me how his labs were. What the blood test results were. I'm like uh...you never told us to get blood results. So she ordered the test. This was Monday before thanksgiving. We got the lab done on Wednesday and today they called me. His levels are good 189. So no muscle disorder. Yay!  Now we just continue physical therapy and will go back for a check up in a few months.

Elijah

Well if you are still following me, we had a baby a year and a half ago. His name is Elijah and he is such a sweet boy. He was born June 12th 2016. At 10 months old, his daycare teacher asked me if i was worried that he didn't straighten his legs. I'm sure that was really hard for her to do, but I said no and blew it off. He never was a fast crawler, and he started walking at 13 months. After he had been walking for awhile, I noticed his legs were still bent and he wasn't straightening them. At his 15 month checkup, I asked his Dr. He was immediately diagnosed with hypertonia. Or high muscle tone. Well what did I do, I googled it and started freaking out. Hypertonia is common in infants and toddlers with cerebral palsy. No mom wants to hear those words. So anyways we were referred to a neurologist. She confirmed the hypertonia and scheduled an MRI. We had to wait 6 weeks for the appointment. We also were referred to an early intervention program for physical therapy. So we went to the hospital 6 weeks later and went to his appointment. He had a cold. He always has a cough. He goes to daycare, and it's winter. So because of the cough, they wouldnt sedate him for the MRI. We had to reschedule. Another 2 weeks go by.